2020 CFF共识指南:晚期囊性纤维化肺病患者的护理
2020年2月,囊性纤维化基金会(CFF)发布了晚期囊性纤维化肺病患者的护理的护理指南。晚期囊性纤维化肺病(ACFLD)比较常见,与患者生活质量下降相关,是导致囊性纤维化患者死亡的常见原因。本文主要针对晚期囊性纤维化肺病患者护理的相关内容提供共识指导。
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The Cystic Fibrosis Foundation (CFF) is a non-profit organization in the United States established to provide the means to cure and control cystic fibrosis (CF). The Foundation provides information about cystic fibrosis and finances CF research that aims to improve the quality of life for people with the disease. The Foundation also engages in legislative lobbying for cystic fibrosis